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Talking about diabetes without fear: key takeaways for every stage of life.

talk-diabetes-without-fear

The first step in talking about diabetes without fear is using respectful and empowering language. Expressions such as “person with diabetes” are preferable to “diabetic”, since they place the person before the condition. It's also important to avoid comments that generate guilt, such as “you shouldn't eat that”, and use a more positive approach instead: what options help you to maintain good glycemic control?1.
Communication should also be empathetic and culturally aware, adapted to the other person's level of understanding and avoiding value judgements2.

Children and pre-adolescents: communicating simply and safely

Communication during childhood depends to a great extent on parents, carers and teachers:

  • Explain diabetes with simple language, highlighting the fact that the child can lead a normal life with a few changes to care for them.
  • Inform teachers and trainers with clear messages: “My child may need to eat something in class or stop training if they feel weak”.
  • Transmit safety: the aim is not to create fear, but confidence.

At this stage, the essential thing is for the people in the child's context to understand the basic points for accompanying them in situations where there is hypoglycaemia and promote an inclusive environment2.

Adolescents: between independence and social acceptance

Adolescence is a very important time: young people are seeking independence and acceptance from their group at one and the same time. Talking about diabetes in this context can generate doubts and fear of being stigmatised.

Practical advice:

  • Choose the right moment: it's better to talk in a quiet space and not in the middle of an exam or tense situation.
  • Use empathy: validating what the adolescent is feeling (“I understand that it can be hard to inject yourself in public”) helps to create confidence3.
  • Explain the importance of safety: friends and teachers need to recognize symptoms of hypoglycemia and know how to respond.
  • Talk about sensitive issues: alcohol, parties and sports require clear and non-judgemental conversations, pointing out how to care for oneself in these situations3.

Young adults: communicating at university and at work

Communication about diabetes at university and at work should be clear and professional.

Brief and direct explanation: “I've got diabetes and I sometimes need to check my blood glucose or have a snack to prevent hypoglycemia. It's nothing serious, it's just for prevention”.

Anticipating doubts and prejudices: you can add “I'm being monitored with a medical team, thanks for your understanding”.
Define specific support: asking someone you can trust who knows how to act in the event of a hypoglycaemia is a practical and reassuring measure4.

The important thing is to normalise the condition and show that it doesn't interfere with you meeting your academic or work responsibilities.

Adults: partner, family and friends

Talking about diabetes in adult life involves sharing how this affects your daily and even most private decisions.

With your partner: it's important to communicate with your partner about how diabetes can affect plans like pregnancy, eating and your sex life. Being open strengthens the relationship and your emotional wellbeing.

Family and friends: ask for practical support (being accompanied during medical appointments, understanding during mealtimes) without it all turning into overprotection.

Friends: explaining what to do in case of severe hypoglycemia or diabetic ketoacidosis (DKA) helps to reduce fears and increase safety5.

Clear communication reduces the emotional load and fosters healthy support networks.

Older people: empathy and respect for experience

During old age, many people with diabetes tend to compare themselves with people they know who are worse off, which can influence the way they perceive their health5.
Recommendations:

  • Listen to their perceptions without abruptly correcting them.
  • Highlight the small wins (“you've improved your management over the last few months”) to motivate them.
  • Adapt the conversation to their experiences and priorities, respect their autonomy.

Stage and key communication strategies 

Children/preadolescents → Simple language, explain to carers and teachers, transmit security
Adolescents → Empathetic conversations, discuss sensitive issues (alcohol, sport), safety at school
Young adults     → Brief and professional communication, ask for specific help at university/work
Adults (partner, family, friends)     → Talk about impact on daily life, ask for support without being smothered, strengthen links
Older people →Empathy, acknowledge their experience, reinforce their motivation and achievements

Talking about diabetes without fear is possible and necessary. Adapting communication according to the age and social context helps to break down barriers, reduce stigmas and build solid support networks. Respectful language, empathy and clarity are the most powerful tools to enable people with diabetes to lead full lives without fear.

 

Sources

  1. Dickinson, J. K., et al. (2017). The use of language in diabetes care and education. Diabetes Care. https://diabetesjournals.org/care/article/40/12/1790/36977/The-Use-of-Language-in-Diabetes-Care-and-Education
  2. Diabetes UK. Comunicación y lenguaje empático en diabetes. Diabetes UK. https://www.diabetes.org.uk/for-professionals/improving-care/good-practice/psychological-care/emotional-health-professionals-guide/chapter-1-communication
  3. Diabetes UK. Consejos para adolescentes con diabetes. Diabetes UK. https://www.diabetes.org.uk/living-with-diabetes/life-with-diabetes/children-and-diabetes/top-teen-tips
  4. Self Magazine. Cómo hablar sobre la diabetes con amigos y compañeros. SELF. https://www.self.com/story/type-2-diabetes-support
  5. Schabert, J., et al. (2008). Social comparisons in diabetes. Health Psychology. https://pubmed.ncbi.nlm.nih.gov/18639997/

About Making Diabetes Easier

Air Liquide Healthcare UK is committed to improving quality of life for people with diabetes. Our healthcare teams provide patients and their loved ones with education, support and personalisation of care.

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